Ethical issues in photovoice studies involving key populations: A scoping review

Ng, Chong Guan and Ting, Sing Qin and Saifi, Rumana Akhter and Kamarulzaman, Adeeba (2024) Ethical issues in photovoice studies involving key populations: A scoping review. Asian Bioethics Review, 16 (1). 109 – 129. ISSN 1793-8759, DOI

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Photovoice, a community-based participatory research method, employs images and words to convey participants' needs, concerns, and desires. It proves particularly valuable in researching marginalized communities who face elevated health risks, disease transmission, and social and health disparities. This paper seeks to investigate the ethical considerations inherent in photovoice research projects. We conducted an extensive literature review spanning four databases to identify pertinent photovoice studies. Ethical issues from the selected articles were identified, categorized, and summarized. Our analysis of twenty-five photovoice studies uncovered various ethical concerns, which had been grouped into informed consent, participant safety and disclosure, privacy and confidentiality, misrepresentation, power dynamics, and compensation. In essence, our findings underscore the importance of addressing these ethical concerns to uphold the rights and autonomy of participants, even as photovoice research strives for authenticity, inclusivity, and empowerment. © 2023, The Author(s).

Item Type: Article
Funders: Berman Institute of Bioethics, National Institutes of Health [Grant no. R25TW010891], Fogarty International Center, Johns Hopkins University, Universiti Malaya
Uncontrolled Keywords: HIV; Marginalized communities; Photovoice; Stigma
Subjects: R Medicine > R Medicine (General)
Divisions: Faculty of Medicine > Medicine Department
Faculty of Medicine > Psychological Medicine Department
Depositing User: Ms. Juhaida Abd Rahim
Date Deposited: 27 Mar 2024 01:42
Last Modified: 27 Mar 2024 01:42

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