The experiences of well-being of family caregivers in palliative care: A qualitative study using thematic analysis

Beng, Tan Seng and Ying, Yeoh Kee and Xin, Cheah Ai and Jane, Lim Ee and Lin, Dong Chooi and Khuen, Lim Poh and Capelle, David Paul and Zainuddin, Sheriza Izwa and Loh, Ee Chin and Lam, Chee Loong (2021) The experiences of well-being of family caregivers in palliative care: A qualitative study using thematic analysis. Progress in Palliative Care, 29 (4). pp. 209-216. ISSN 0969-9260, DOI

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Background Family caregivers play an important role in supporting patients at the end of life. Although providing care for palliative care patients can be inherently stressful, it is possible for family caregivers to experience both positive experiences and stress simultaneously. Understanding these positive experiences can be helpful to aid counterbalancing the negative aspect of caregiving. Objective and Methods Therefore, we conducted a qualitative study using face-to-face interviews with semi-structured questions to explore the experiences of well-being of palliative care family caregivers from a positive perspective. The entire sample consisted of 18 family members caring for cancer patients and 2 family members caring for patients with motor neuron disease. The interviews were transcribed verbatim and thematically analyzed with qualitative research software NVIVO. Results The themes generated from the analysis are: (1) Acceptance, (2) Gratitude, (3) Hope, (4) Happiness and (5) Support. Conclusions The 5 themes provide 6 constructs for independent intervention. Understanding these themes that promote caregiver well-being can be a guide for us to take care of our family caregivers.

Item Type: Article
Uncontrolled Keywords: Well-being; Family caregiver; Palliative care; Psychosocial care; Thematic analysis
Subjects: R Medicine > RA Public aspects of medicine > RA0421 Public health. Hygiene. Preventive Medicine
Divisions: Faculty of Medicine > Medicine Department
Faculty of Medicine > Psychological Medicine Department
Depositing User: Ms Zaharah Ramly
Date Deposited: 01 Sep 2022 08:22
Last Modified: 01 Sep 2022 08:22

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