Perceptions associated with the public attitudes toward epilepsy (PATE) scale: A mixed-method study

Chia, Zhi-Jien and Lim, Kheng Seang and Lee, Shu-Ren and Lai, Weng-Wai and Chan, Pei-Qi and Ng, Sherwin-Johan and Fong, Si Lei and Tan, Chong Tin (2021) Perceptions associated with the public attitudes toward epilepsy (PATE) scale: A mixed-method study. Epilepsy & Behavior, 117. ISSN 1525-5050, DOI

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Background: In epilepsy stigma, certain perceptions are culturally dependent and greatly influence a person's attitudes. Hence, we aimed to explore the perceptions associated with attitudes toward epilepsy in various urban subpopulations. Method: This is a mixed-method study employing the Public Attitude Toward Epilepsy (PATE) scale as the quantitative measure, followed by a semi-structured interview. The qualitative data were then counted and analyzed concurrently with the quantitative data. Result: A total of 410 respondents (104 people with epilepsy PWE]; 104 family members FM]; 100 medical students MS]; 102 public Pb]) aged 37 years (IQR 23-55) were recruited. They were mostly female (57.3%), Chinese (52.0%), and highly educated (63.7%). The attitudes toward epilepsy among medical students are the best, followed by the PWE and their family members, and the worst among the public. The qualitative results revealed 4 main themes, which were `'general social values'', `'epilepsy severity and control'', `'PWE's abilities'', and `'harms and burdens to the respondents and others''. A two-dimensional perception model was constructed based on these themes, which consisted of general-personal and universal-specific dimensions. Generally, the PWE/FM subgroup focused more on PWE's abilities, whereas the MS/Pb subgroup more on general social values, and harms and burden. In the education aspect, most attitudes were related to the epilepsy severity and PWE's abilities, whereas in employment, the main consideration was the PWE's abilities. Burden to life and concern about inheritance were major considerations in the marital relationship. Those with positive attitudes tend to highlight the importance of general social values, while negative attitudes associated more with epilepsy severity. In general domain, general social values were the main considering factor but in personal domain, most participants will consider epilepsy severity and control, harms and burden to themselves. Conclusion: The perceptions underlying attitudes toward epilepsy were complex and varied between subpopulations, attitude levels, domains, and aspects of life. (304 words) (C) 2021 Elsevier Inc. All rights reserved.

Item Type: Article
Funders: University of Malaya Research Grant [RP052A-17HTM] [RP052C-17HTM]
Uncontrolled Keywords: Social stigma; Public attitudes toward epilepsy; Perception; Qualitative; Stigmatization model
Subjects: R Medicine > RC Internal medicine > RC0321 Neuroscience. Biological psychiatry. Neuropsychiatry
Divisions: Faculty of Medicine > School of Medicine
Depositing User: Ms Zaharah Ramly
Date Deposited: 27 Jun 2022 04:57
Last Modified: 27 Jun 2022 04:57

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