Wan, Puspa Melati and Ali, Affezah and Mognard, Elise and Jegathesan, Anasuya Jegathevi and Lee, Soon Li and Ganesan, Rajalakshmi and Noor, Mohd Ismail and Rochedy, Amandine and Valette, Marion and Tauber, Maithe and Thong, Meow-Keong and Poulain, Jean-Pierre (2024) Management of food socialization for children with Prader-Willi Syndrome: An exploration study in Malaysia. PLoS ONE, 19 (8). e0307874. ISSN 1932-6203, DOI https://doi.org/10.1371/journal.pone.0307874.
Full text not available from this repository.Abstract
This study aims to explore the food management strategies among caregivers/family members of children with Prader-Willi Syndrome (PWS) using the lens of `familialisation' of a health problem and the sociology of food socialization. Food intake among individuals with PWS is a main concern for parents, caregivers, and medical practitioners as it affects their physical, mental, and social well-being throughout their lives. Earlier studies on PWS and food intake centered around dietary management, dietary intake and growth, nutritional treatment and pharmacological approaches, nutritional phases, and weight gain. However, little has been done to understand the challenges of managing children with PWS from the sociological lens of food management strategies and socialization among families in Malaysia. This study is based on an investigation involving eight children with PWS and 46 family members and caregivers through lab observations and reflexive interviews. Ten food management strategies were identified that were adopted by the caregivers and families, which were influenced by cultural factors, family norms, and formal and informal support systems. The findings will influence future behavioral interventions to ensure the empowerment and well-being of individuals with PWS and their families.
| Item Type: | Article |
|---|---|
| Funders: | Ministry of Higher Education & Scientific Research (MHESR) (MYPAIR/1/2020/SS05/TAYLOR/1), Ministry of Europe and Foreign Affairs (MEAE), Ministry of National Education, Higher Education and Research (MESRI), France, Chair of Food Studies of Taylor's Toulouse University Center (TTUC) |
| Subjects: | R Medicine > R Medicine (General) |
| Divisions: | Universiti Malaya Medical Centre (UMMC) |
| Depositing User: | Ms. Juhaida Abd Rahim |
| Date Deposited: | 14 Apr 2025 07:09 |
| Last Modified: | 14 Apr 2025 07:09 |
| URI: | http://eprints.um.edu.my/id/eprint/46589 |
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