Walker, Martin and Freitas, Luzia T. and Halder, Julia B. and Brack, Matthew and Keiser, Jennifer and King, Charles H. and Levecke, Bruno and Lim, Yvonne Ai Lian and Pieri, Otavio and Sow, Doudou and Stothard, J. Russell and Webster, Joanne P. and Zhou, Xiao-Nong and Terry, Robert F. and Guérin, Philippe J. and Basáñez, Maria-Gloria (2022) Improving anthelmintic treatment for schistosomiasis and soil-transmitted helminthiases through sharing and reuse of individual participant data. Wellcome Open Research, 7 (2). 183 – 211. ISSN 2398-502X, DOI https://doi.org/10.12688/wellcomeopenres.17468.1.
Full text not available from this repository.Abstract
The Infectious Diseases Data Observatory (IDDO, https://www.iddo.org) has launched a clinical data platform for the collation, curation, standardisation and reuse of individual participant data (IPD) on treatments for two of the most globally important neglected tropical diseases (NTDs), schistosomiasis (SCH) and soil-transmitted helminthiases (STHs). This initiative aims to harness the power of data-sharing by facilitating collaborative joint analyses of pooled datasets to generate robust evidence on the efficacy and safety of anthelminthic treatment regimens. A crucial component of this endeavour has been the development of a Research Agenda to promote engagement with the SCH and STH research and disease control communities by highlighting key questions that could be tackled using data shared through the IDDO platform. Here, we give a contextual overview of the priority research themes articulated in the Research Agenda-a 'living' document hosted on the IDDO website-and describe the three-stage consultation process behind its development. We also discuss the sustainability and future directions of the platform, emphasising throughout the power and promise of ethical and equitable sharing and reuse of clinical data to support the elimination of NTDs. © 2022 Walker M et al.
| Item Type: | Article |
|---|---|
| Funders: | Firoz Lalji Institute for Africa, World Health Organization, University of Georgia, Ministry of Health, London School of Economics and Political Science |
| Uncontrolled Keywords: | Anthelmintic; Data reuse; Data sharing; Neglected tropical diseases; Schistosomiasis; Soil-transmitted helminthiasis; Treatment |
| Subjects: | R Medicine |
| Divisions: | Faculty of Medicine > Parasitology Deparment |
| Depositing User: | Ms. Juhaida Abd Rahim |
| Date Deposited: | 15 Feb 2024 06:55 |
| Last Modified: | 15 Feb 2024 06:55 |
| URI: | http://eprints.um.edu.my/id/eprint/43833 |
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