Kuek, Chee Ying and Singh, Gurmukh and Tay, Pek San (2021) Conception of saviour siblings: Ethical perceptions of selected stakeholders in Malaysia. Asian Bioethics Review, 13 (2). pp. 167-178. ISSN 1793-8759, DOI https://doi.org/10.1007/s41649-021-00166-2.
Full text not available from this repository.Abstract
The conception of saviour siblings using preimplantation genetic diagnosis coupled with human leukocyte antigen (HLA) typing or HLA typing alone is controversial and receives a wide divergence of legal responses among countries around the world. The resulting child conceived through this procedure is dubbed a `saviour sibling' as the child can potentially act as a compatible donor for an elder ailing sibling who needs a haematopoietic stem cell transplantation. At present, the acceptability of this procedure in Malaysia is ambiguous as there is no specific statute governing assisted reproductive technology, and the guideline issued by the Malaysian Medical Council does not expressly address this issue. The ethical arguments relating to the conception of saviour siblings in the current literature are mainly thought to reflect a liberal viewpoint which is predominantly Western in nature. This paper seeks to explore the perception of selected key stakeholders on the acceptability of and ethical concerns related to this procedure in the Malaysian context. The findings indicate that stakeholders generally support the conception of saviour siblings and some of their concerns echo the Western viewpoint. Interestingly, many were highly anxious about its economic implication, which is rarely discussed in the current literature on saviour siblings.
| Item Type: | Article |
|---|---|
| Funders: | None |
| Uncontrolled Keywords: | Ethical perceptions; Haematopoietic stem cell transplantation; HLA typing; Malaysia; Assisted reproduction; Preimplantation genetic diagnosis; Saviour sibling |
| Subjects: | R Medicine > R Medicine (General) |
| Divisions: | Faculty of Law |
| Depositing User: | Ms Zaharah Ramly |
| Date Deposited: | 11 May 2022 06:57 |
| Last Modified: | 11 May 2022 06:57 |
| URI: | http://eprints.um.edu.my/id/eprint/34848 |
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