Edgar, Suzanna and Abdul-Aziz, Nur Adilah and Loh, Ee Chin and Capelle, David Paul and Goh, Khean-Jin and Latif, Lydia Abdul and Shahrizaila, Nortina and Ahmad-Annuar, Azlina (2021) A survey on patients' disease perception and the impact of the COVID-19 pandemic on persons living with amyotrophic lateral sclerosis in Malaysia. Neurodegenerative Disease Management, 11 (04). pp. 307-314. ISSN 1758-2024, DOI https://doi.org/10.2217/nmt-2021-0004.
Full text not available from this repository.Abstract
To investigate the patients' perception of their disease, its management and the impact of the COVID-19 pandemic on persons living with amyotrophic lateral sclerosis (ALS) in Malaysia. Patients & methods: An online survey comprising 42 questions was conducted on ALS patients during the peak of the COVID-19 pandemic. Results: Responses were received from 37/60 (62%) participants with ALS directly or through their caregivers. During the COVID-19 pandemic, two-thirds of patients were negatively impacted by the sudden disruption to their hospital appointments, rehabilitation sessions and reduced social interactions. Conclusion: This study provided insight into patients' perception of their care and management of ALS in Malaysia which will facilitate in implementing changes that can improve care to persons living with this devastating illness.
| Item Type: | Article |
|---|---|
| Funders: | Malaysian Ministry of Education Fundamental Research Grant Scheme[FRGS/1/2018/SKK08/UM/01/1], Amyotrophic Lateral Sclerosis Association[IF008-2019], Sydney Southeast Asia Center[IF012-2019] |
| Uncontrolled Keywords: | ALS;COVID-19;Disease management;Malaysia;Motor neurone disease;Survey |
| Subjects: | R Medicine R Medicine > RA Public aspects of medicine |
| Divisions: | Faculty of Medicine |
| Depositing User: | Ms Zaharah Ramly |
| Date Deposited: | 07 Sep 2022 04:31 |
| Last Modified: | 07 Sep 2022 04:31 |
| URI: | http://eprints.um.edu.my/id/eprint/34820 |
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