Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world

Rogers, Simon N. and Alvear, Alvaro and Anesi, Alexandre and Babin, Emmanuel and Balik, Ali and Batstone, Martin and Brockmeyer, Phillipp and Carrasco, Claudia Celedon and Chien, Chih‐Yen and Chirila, Magdalena and Dholam, Kanchan P. and Doss, Jennifer Geraldine and Finizia, Caterina and Ghani, Wan Maria Nabillah Wan Abdul and Gurav, Sandeep V. and Kadir, Kathreena and Kolator, Mateusz and Lima, Roberto and Lin, Yu‐Tsai and Nhongo, Simon and Ozdemir‐Karatas, Meltem and Peker, Kadriye and Pesic, Zoran and Ransy, Pierre and Santos, Izabella and Schliephake, Henning and Shah, Ketan and Souza, Fernanda and Sunil, Geethu and Thankappan, Krishnakumar and Ehrsson, Ylva Tiblom and Tiple, Cristina and Tuomi, Lisa and Valerini, Sara and Lara, Pablo Vasquez and Zatoński, Tomasz and Lowe, Derek (2020) Variations in concerns reported on the patient concerns inventory in patients with head and neck cancer from different health settings across the world. Head & Neck, 42 (3). pp. 498-512. ISSN 1043-3074

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Official URL: https://doi.org/10.1002/hed.26027

Abstract

Background: The aim was to collate and contrast patient concerns from a range of different head and neck cancer follow-up clinics around the world. Also, we sought to explore the relationship, if any, between responses to the patient concerns inventory (PCI) and overall quality of life (QOL). Methods: Nineteen units participated with intention of including 100 patients per site as close to a consecutive series as possible in order to minimize selection bias. Results: There were 2136 patients with a median total number of PCI items selected of 5 (2-10). “Fear of the cancer returning” (39%) and “dry mouth” (37%) were most common. Twenty-five percent (524) reported less than good QOL. Conclusion: There was considerable variation between units in the number of items selected and in overall QOL, even after allowing for case-mix variables. There was a strong progressive association between the number of PCI items and QOL. © 2019 The Authors. Head & Neck published by Wiley Periodicals, Inc.

Item Type: Article
Uncontrolled Keywords: head and neck cancer; patient concerns inventory; patient prompt list; quality of life
Subjects: R Medicine
R Medicine > RK Dentistry
Divisions: Faculty of Dentistry
Faculty of Medicine
Depositing User: Ms. Juhaida Abd Rahim
Date Deposited: 05 Aug 2020 02:56
Last Modified: 05 Aug 2020 02:56
URI: http://eprints.um.edu.my/id/eprint/25249

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