Development of electronic medical records for clinical and research purposes: the breast cancer module using an implementation framework in a middle income country- Malaysia

Mohd Nor, Nurul Aqilah and Mohd Taib, Nur Aishah and Saad, Marniza and Zaini, Hana Salwani and Ahmad, Zahir and Ahmad, Yamin and Dhillon, Sarinder Kaur (2019) Development of electronic medical records for clinical and research purposes: the breast cancer module using an implementation framework in a middle income country- Malaysia. BMC Bioinformatics, 19 (S13). p. 402. ISSN 1471-2105, DOI https://doi.org/10.1186/s12859-018-2406-9.

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Official URL: https://doi.org/10.1186/s12859-018-2406-9

Abstract

Background: Advances in medical domain has led to an increase of clinical data production which offers enhancement opportunities for clinical research sector. In this paper, we propose to expand the scope of Electronic Medical Records in the University Malaya Medical Center (UMMC) using different techniques in establishing interoperability functions between multiple clinical departments involving diagnosis, screening and treatment of breast cancer and building automatic systems for clinical audits as well as for potential data mining to enhance clinical breast cancer research in the future. Results: Quality Implementation Framework (QIF) was adopted to develop the breast cancer module as part of the in-house EMR system used at UMMC, called i-Pesakit©. The completion of the i-Pesakit© Breast Cancer Module requires management of clinical data electronically, integration of clinical data from multiple internal clinical departments towards setting up of a research focused patient data governance model. The 14 QIF steps were performed in four main phases involved in this study which are (i) initial considerations regarding host setting, (ii) creating structure for implementation, (iii) ongoing structure once implementation begins, and (iv) improving future applications. The architectural framework of the module incorporates both clinical and research needs that comply to the Personal Data Protection Act. Conclusion: The completion of the UMMC i-Pesakit© Breast Cancer Module required populating EMR including management of clinical data access, establishing information technology and research focused governance model and integrating clinical data from multiple internal clinical departments. This multidisciplinary collaboration has enhanced the quality of data capture in clinical service, benefited hospital data monitoring, quality assurance, audit reporting and research data management, as well as a framework for implementing a responsive EMR for a clinical and research organization in a typical middle-income country setting. Future applications include establishing integration with external organization such as the National Registration Department for mortality data, reporting of institutional data for national cancer registry as well as data mining for clinical research. We believe that integration of multiple clinical visit data sources provides a more comprehensive, accurate and real-time update of clinical data to be used for epidemiological studies and audits. © 2018 The Author(s).

Item Type: Article
Funders: University of Malaya’s Postgraduate Research Fund (PG130-2013A), Prototype Research Grant Scheme (PR001-2017A), High Impact Research Grant (UM.C/HIR/MOHE/06) from the Ministry of Higher Education, Malaysia, University of Malaya’s Postgraduate Research Fund (PG130-2013A)
Uncontrolled Keywords: Breast Cancer; Database mirroring; Electronic medical record; Medical system; Quality implementation framework
Subjects: R Medicine
Divisions: Faculty of Medicine
Depositing User: Ms. Juhaida Abd Rahim
Date Deposited: 11 Mar 2020 01:14
Last Modified: 11 Mar 2020 01:14
URI: http://eprints.um.edu.my/id/eprint/23991

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